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STORY OF HOPE | Alice's Story

Posted by Guest Author on Mar, Mon 05, 2018

I’ve always wondered,“What does sick look like?” While growing up with congenital heart disease, I was commonly told I looked too young, too healthy, too pretty, or even too happy to have a complex, chronic condition that labeled me as “sick.” Society did its best to push these stereotypical labels on me of what I should look like and what I should expect from my life, but I refused to accept it. Instead, I fought to show the world that disease is not identified by age or appearance.

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Tags: heart condition, medical ID bracelet, congenital heart defect, StoryofHope, donor

National Congenital Heart Defect Week (Feb 7-14)

Posted by Brittany McNeal on Feb, Sun 09, 2014

The week of February 7-14 is National Congenital Heart Defect Week! If you or a loved one has been diagnosed with a Congenital Heart Defect, we encourage you to visit the American Heart Association's website or the Congenital Heart Defect Information Network for more information and resources about living with a Congenital Heart Defect. 

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Tags: congenital heart defect, national congenital heart defect awareness week

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