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Five Facts About Hemophilia

Posted by Tara Cohen on Jul, Wed 03, 2013

bleeding disorders are inheritedWhat is Hemophilia?

Hemophilia is an umbrella term that covers three major bleeding disorders:

  1. Hemophilia A, Hemophilia B, and Von Willebrand Disease are bleeding disorders that can dramatically impair the body’s ability to clot and lengthen the time it takes for the body to do so.
  2. Hemophilia is a genetic disorder caused by an insufficient supply of Factor VIII or IX.
  3. Hemophilia may be so mild that it goes undiagnosed for many years or so severe that the patient experiences severe internal bleeding.
  4. Hemophilia is more common in men than women, although women can and do have hemophilia.
  5. People with these bleeding disorders are at higher risk of internal bleeding, excessive bleeding, and bleeding in joint spaces than most people, which means they require additional medical attention, testing, and monitoring in the event of a trauma.

If you have Hemophilia A, Hemophilia B, or Von Willebrand Disease, you are at risk of having a major bleeding event. Of particular note are the above-mentioned risks of internal bleeding, particularly in the joint spaces, and excessive bleeding in the event of a trauma. Emergency personnel need to know immediately if you have a bleeding disorder so that they can act fast to address any external bleeding and take extra precautions to check thoroughly for internal bleeding. If you are unable to advocate for yourself, a hemophilia medical ID necklace or bracelet will provide this essential information exactly when it’s needed.

What To Engrave On A Hemophilia Medical Alert Bracelet

For people with Hemophilia, medical alert jewelry is truly imperative. Your medical ID should have your name, diagnosis(es), any known allergies (or "NKA" for "No Known Allergies,"), and an ICE (In Case of Emergency) phone number. If you are on medications for your bleeding disorder, medical alert jewelry isn't always the best place to list them, because medications tend to change. Instead, list, "SEE WALLET CARD," and keep a regularly updated FREE Lauren's Hope Wallet Card next to your Driver's License in your wallet. Here are some suggestions for what to engrave on a bleeding disorder medical alert bracelet

JOE SMITH - NKA

HEMOPHILIA A

sitka medical alert braceletRXS: SEE WALLET CARD

ICE: 333.444.5555

DR: 333.444.5556

 

OR

 

JACK JONES

HEMOPHILIA B

ALGY BEES USE EPIPEN

SEE WALLET CARD

ICE: 333.222.1111

order custom tags

Do you have a bleeding disorder? We want to talk to you! Reach out to us at [email protected], and tell us your story! We may feature you on the Lauren's Hope blog! 

Tags: hemophilia a awareness, hemophilia, hemophilia awareness, what should I engrave on my medical ID tag, what to engrave on my medical ID tag, von willebrand's disease, bleeding disorders, Hemophilia B

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