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Spotlight On Adrenal Disorders

  
  
  

Spotlight On Adrenal Disorders

Adrenal disorders are a complex set of disorders, and they’re rather uncommon, which makes them even less understood by the general public. Here at Lauren’s Hope, though, we hear from customers regularly who need medical ID jewelry for a number of adrenal disorders:

  • Adrenal Insufficiency and Addison’s Disease: With adrenal insufficiency, the adrenal glands, which are located on top of each kidney, produce too little of the three hormones for which they are responsible (glucocorticoids, mineralocorticoids, and androgens). There are three types of adrenal insufficiency, and they are primary adrenal insufficiency (also called Addison’s Disease), secondary adrenal insufficiency, and tertiary adrenal insufficiency. In all three cases, there is a risk of adrenal crisis, which is a life-threatening emergency requiring an emergency injection of glucocorticoid and immediate medical attention.
  • Cushing’s Syndrome: Cushing’s Syndrome is an adrenal disorder associated with extremely high cortisol levels. It is a serious disease, and it can lead to the even more rare diagnosis of Cushing’s Disease. Sometimes, people develop Addison’s as a result of their Cushing’s Syndrome treatment, but as Cushing’s Syndrome has a 50% five-year survival rate, dealing with the long-term impact of Addison’s is considered the lesser of the two evils.
  • Pheochromocytoma: This rare tumor grows on the adrenal gland and causes overproduction of norepinephrine and epinephrine, which are hormones responsible for essential body regulations such as heart rate, blood pressure, and metabolism.
  • Congenital Adrenal Hyperplasia: These genetic adrenal gland disorders cause people to lack the enzyme adrenal glands need in order to produce cortisol and aldosterone. Additionally, people with congenital adrenal hyperplasia overproduce androgen, which is a male hormone that, in excess, causes male sexual characteristics to develop earlier than usual or inappropriately (e.g.: in girls).
  • Hyperaldosteronism: When people produce too much aldosterone, as is the case with congenital adrenal hyperplasia, the condition is called hyperaldosteronism, aldosteronism, Conn’s Disease, or Conn’s Syndrome. This condition can cause decreased blood potassium levels, and that is called hypokalemia.

Do you wear an adrenal disorder medical ID bracelet? We want to hear your story!


Comments

When I first learned that I would need to wear a medical id bracelet due to adrenal insufficiency I was not happy. I ordered a necklace from another company but I didnt like it at all. I was thrilled to find your site. I have three bracelets now. I get compliments about them all the time.  
 
I was diagnosed with adrenal insufficiency due to prolonged steriod use. I was lucky to have an astute doctor that listened to my symptoms and took me seriously. Often people with this condition aren't diagnosed until they have a crisis and even then the dx is sometimes missed. In my case I may some day be able to wean off steriods but i would still want to wear my bracelets! I would have to find something to replace the medical tags!!
Posted @ Thursday, February 21, 2013 7:31 AM by Cathy Dempsey
My Central Adrenal Insufficiency (or Secondary Adrenal Insufficiency) was diagnosed following about 7 months of severe gastrointestinal problems, problems with very low blood pressure, and a weight loss of approximately 70 lbs. We did testing for my cortisol levels in November 2011 and they were borderline, but pretty low. My doctor said she couldn't diagnose me based on the levels but wasn't convinced that there wasn't a problem. When my symptoms persisted, she tested me again in March 2012 and diagnosed me with Auto Immune Central Adrenal Insufficiency.  
 
When I was told I would have to wear a medical alert bracelet, all I could think of was that I didn't want to wear something that was ugly. I came home and found Lauren’s Hope on the internet. I immediately ordered my first bracelet and tag with a second bracelet to be able to switch them out. A couple months later I ordered a simple stainless steel bracelet to wear when swimming or at the beach (I have a pool) so I would not ruin the beautiful work of my other bracelets with chlorine, sunblock, and/or sand. My husband and kids got me another one that I liked for Christmas this past year so I now have a total of four. I also carry a small set of index cards in my wallet with my medical history, current list of medications, and current list of physicians in case something should ever happen to me. I hope I never need my bracelet, but if I do, I know it will serve the purpose it is intended to.  
 
I have told everyone I know about Lauren’s Hope including my doctors – there is no reason for people to have to wear medical alert jewelry that they do not like just because it is necessary.  
 
Posted @ Thursday, February 21, 2013 9:12 AM by Rene Kiser
I have Addison's Disease almost 4years now. I am so glad to see that you posted information about it. I have been in the hospital 3 times with adrenial crisis. Many people have never treated someone with Addison's. Keep up the good work. I am waiting on my medID from your company this week. Thank you.
Posted @ Monday, March 04, 2013 11:08 AM by Bonnie Singer
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