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When your child has health concerns, special needs, learning challenges, or any other condition or diagnosis that requires special accommodations, assistance, or awareness at school, there’s paperwork involved. And meetings. And then typically more paperwork and more meetings. But when you’re new to the diagnosis, sometimes, you simply don’t even know what to ask for. Here’s a little help getting started, from a mom who’s been there.
Summer is officially upon us, and although sunscreen should be worn year-round, summertime is a great reminder of how important sunscreen really is, not just for redheads like myself, but for everyone of every ethnicity and skin type!
Summer travel can pose some pretty interesting dilemmas to those of us with food allergies, food sensitivities, and Celiac Disease. If you’re like me, one of the estimated 20 million Americans with some variety of gluten-sensitivity, summer travel can cause more headaches than a delayed flight or highway construction.
Years ago, I learned about Durable Medical Equipment (DME) companies when my husband was diagnosed with sleep apnea and had to get a CPAP (Continuous Positive Airway Pressure) machine. I quickly learned that within our insurance policy, there was a little section on which medical devices were covered, when, why, how often, how much, and for which conditions. It was confusing to say the least. Fortunately, my husband went to our approved local DME shop, got fitted for his alien space helmet (have you seen one of these things?), and that was the end of that. Every year or so he would go get updated equipment, but really, there wasn't much to it.
In Part 1 and Part 2 of Adventures in Tube Feeding: G-Tubes & Autism, I shared my family’s recent medical emergency. My 9-year-old son, Will, who has severe autism and is nonverbal, went on a hunger strike, and as a result, ended up in the hospital for nearly two weeks, ultimately getting a feeding tube called a microvasive G-Tube. Now, while he is undergoing extensive feeding aversion therapy, Will can get all the nutrients he needs through what is essentially an access port to his stomach.
Recently, I shared the news that my nine-year-old son just spent 11 days in the hospital due to severe feeding aversion issues that resulted in life-threateningly low potassium levels. So, what is a feeding aversion?
If you’ve followed the Lauren’s Hope blog for a while, you know that sometimes I write about my kids and their medical needs. Julia, 7, wears her Lauren’s Hope medical ID bracelet for her chocolate allergy and for the simple fact that I know she would completely freak out and forget our phone number in an emergency. Will, 9, wears his Lauren’s Hope medical ID bracelet because he has severe autism and is nonverbal. He’s had the same one for quite a while now, but last week, I had to order Will a new medical ID tag. The reason? Will just spent 11 days in the hospital and got a G-Tube.
May 15-June 15 is Tourette Syndrome Awareness Month. It’s estimated that three to six out of every 1,000 children has Tourette Syndrome. Tourette Syndrome is an inherited syndrome, so if one parent has a dominant Tourette Syndrome gene, there is a 50% chance the child will develop Tourette Syndrome. Males are three times more likely to develop, and 75% of children with Tourette Syndrome develop tics before the age of 11.
June is Post-Traumatic Stress Disorder Awareness Month. Although PTSD has been brought to the nation’s attention by the staggering number of war veterans who return home with it, Post-Traumatic Stress Disorder doesn’t just occur in veterans. An estimated 7.7 million Americans have PTSD. One in 10 women will develop PTSD in her lifetime, and 50% of those with Post-Traumatic Stress Disorder don’t seek treatment.
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