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Years ago, I learned about Durable Medical Equipment (DME) companies when my husband was diagnosed with sleep apnea and had to get a CPAP (Continuous Positive Airway Pressure) machine. I quickly learned that within our insurance policy, there was a little section on which medical devices were covered, when, why, how often, how much, and for which conditions. It was confusing to say the least. Fortunately, my husband went to our approved local DME shop, got fitted for his alien space helmet (have you seen one of these things?), and that was the end of that. Every year or so he would go get updated equipment, but really, there wasn't much to it.
In Part 1 and Part 2 of Adventures in Tube Feeding: G-Tubes & Autism, I shared my family’s recent medical emergency. My 9-year-old son, Will, who has severe autism and is nonverbal, went on a hunger strike, and as a result, ended up in the hospital for nearly two weeks, ultimately getting a feeding tube called a microvasive G-Tube. Now, while he is undergoing extensive feeding aversion therapy, Will can get all the nutrients he needs through what is essentially an access port to his stomach.
Recently, I shared the news that my nine-year-old son just spent 11 days in the hospital due to severe feeding aversion issues that resulted in life-threateningly low potassium levels. So, what is a feeding aversion?
If you’ve followed the Lauren’s Hope blog for a while, you know that sometimes I write about my kids and their medical needs. Julia, 7, wears her Lauren’s Hope medical ID bracelet for her chocolate allergy and for the simple fact that I know she would completely freak out and forget our phone number in an emergency. Will, 9, wears his Lauren’s Hope medical ID bracelet because he has severe autism and is nonverbal. He’s had the same one for quite a while now, but last week, I had to order Will a new medical ID tag. The reason? Will just spent 11 days in the hospital and got a G-Tube.
May 15-June 15 is Tourette Syndrome Awareness Month. It’s estimated that three to six out of every 1,000 children has Tourette Syndrome. Tourette Syndrome is an inherited syndrome, so if one parent has a dominant Tourette Syndrome gene, there is a 50% chance the child will develop Tourette Syndrome. Males are three times more likely to develop, and 75% of children with Tourette Syndrome develop tics before the age of 11.
June is Post-Traumatic Stress Disorder Awareness Month. Although PTSD has been brought to the nation’s attention by the staggering number of war veterans who return home with it, Post-Traumatic Stress Disorder doesn’t just occur in veterans. An estimated 7.7 million Americans have PTSD. One in 10 women will develop PTSD in her lifetime, and 50% of those with Post-Traumatic Stress Disorder don’t seek treatment.
Huntington’s Disease is a hereditary brain disorder that affects people of every race, all over the world. In the United States, Huntington’s Disease occurs in about one in 10,000 people, and currently, about 30,000 people in the U.S. have Huntington’s Disease. Up to 200,000 people in the U.S. are at risk of developing Huntington’s Disease in their lifetime.
When it comes to Summer, aside from the warm weather and pretty flowers, my favorite part is cooking out with friends and family. Since I was diagnosed with Celiac Disease, however, I look at barbecues a bit differently. Instead of seeing a delicious spread of potato salad, coleslaw, and chips, I see unknown cooking surfaces, mystery seasonings, and cross-contamination risks.
Monday is Memorial Day. While that typically means a day off work, lots of picnics, and the unofficial start to summer, we all know the true purpose of Memorial Day is honoring those US military personnel who have died in service to our nation. So today's Free Stuff Friday is a little different. Today, we're not giving away Lauren's Hope medical ID bracelets. Today, we're giving away three pieces from our new Love & Beloved line of personalized jewelry.
Traumatic Brain Injuries affect 1.7 million people annually. A Traumatic Brain Injury (TBI) is a form of acquired brain injury that occurs when a sudden trauma causes damage to the brain. A TBI can happen when the head suddenly and violently hits an object, or when an object pierces the skull and then enters the brain. Concussions are the most common form of Traumatic Brain Injury.
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