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Years ago, I learned about Durable Medical Equipment (DME) companies when my husband was diagnosed with sleep apnea and had to get a CPAP (Continuous Positive Airway Pressure) machine. I quickly learned that within our insurance policy, there was a little section on which medical devices were covered, when, why, how often, how much, and for which conditions. It was confusing to say the least. Fortunately, my husband went to our approved local DME shop, got fitted for his alien space helmet (have you seen one of these things?), and that was the end of that. Every year or so he would go get updated equipment, but really, there wasn't much to it.
In Part 1 and Part 2 of Adventures in Tube Feeding: G-Tubes & Autism, I shared my family’s recent medical emergency. My 9-year-old son, Will, who has severe autism and is nonverbal, went on a hunger strike, and as a result, ended up in the hospital for nearly two weeks, ultimately getting a feeding tube called a microvasive G-Tube. Now, while he is undergoing extensive feeding aversion therapy, Will can get all the nutrients he needs through what is essentially an access port to his stomach.
Recently, I shared the news that my nine-year-old son just spent 11 days in the hospital due to severe feeding aversion issues that resulted in life-threateningly low potassium levels. So, what is a feeding aversion?
If you’ve followed the Lauren’s Hope blog for a while, you know that sometimes I write about my kids and their medical needs. Julia, 7, wears her Lauren’s Hope medical ID bracelet for her chocolate allergy and for the simple fact that I know she would completely freak out and forget our phone number in an emergency. Will, 9, wears his Lauren’s Hope medical ID bracelet because he has severe autism and is nonverbal. He’s had the same one for quite a while now, but last week, I had to order Will a new medical ID tag. The reason? Will just spent 11 days in the hospital and got a G-Tube.
Monday is Memorial Day. While that typically means a day off work, lots of picnics, and the unofficial start to summer, we all know the true purpose of Memorial Day is honoring those US military personnel who have died in service to our nation. So today's Free Stuff Friday is a little different. Today, we're not giving away Lauren's Hope medical ID bracelets. Today, we're giving away three pieces from our new Love & Beloved line of personalized jewelry.
Whether you're cheering or groaning over the end of the school year, it's here, and for parents of children with chronic health conditions or special needs (as, let's face it, with everything else for us), there's extra work to do. As the mom of a third grader with severe, nonverbal autism and the mom of a first grader with a chocolate allergy, I'm not just wrapping up the year and looking forward to summer vacation. I'm doing year-end IEP meetings and coordinating with summer camp personnel to make appropriate arrangements for their care all summer long. Don't get me wrong. We have a healthy dose of FUN planned for the summer, but making that happen ... well, it just takes a bit more planning when you're a special-needs parent.
This week marks the Fifth Annual Diabetes Blog Week, headed up by one of our favorite DBloggers and a true DOC leader, Karen Graffeo of Bitter~Sweet Diabetes. Diabetes Blog Week is an inspiring, empowering week during which upwards of 175 DOC bloggers join together and commit to blogging daily on a set of pre-determined topics.
What day is it? That's right, friends! It's FRIDAY! And better than that, it's FREE STUFF FRIDAY! Our favorite kind of Friday!
Recently, we introduced our readers to some new friends of ours, the folks at the Kids With Courage Foundation. Kids With Courage is a Kansas City-area nonprofit organization that supports kids with Type 1 Diabetes and their families. With year-round support, education, social, and resource-oriented events the all-volunteer team at KWC are busy people. Add to that their annual One Inspired Evening Gala and their signature Crates Full of Courage efforts, through which they provide outstanding resources and much-needed support to newly diagnosed families at Children's Mercy Hospital, and you've got one amazing organization.
Lauren’s Hope Medical ID Jewelry was founded after CEO and Owner, LeAnn Carlson, created a stylish, interchangeable medical alert bracelet for a teenage girl with Type 1 Diabetes who simply refused to wear the unattractive, uncomfortable medical alert jewelry of the past. Since making that very first bracelet in 2001, Type 1 Diabetes has remained a high priority here at Lauren’s Hope. In addition to regularly attending diabetes events in our community; sending gift certificates, donations, and other forms of support to diabetes-related events and organizations around the world; and making a concerted effort to raise awareness of Type 1 Diabetes on a regular basis, Lauren’s Hope has donated well over $100,000 to the JDRF. When we say T1D is important around here, we really do mean it.
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